HD is an inherited disease that causes nerve cells in the brain to gradually break down.
Over time, this damage causes symptoms that can disrupt everyday life–physically, mentally, and emotionally.
The possible symptoms can be divided into 3 main areas:
MOVEMENTS
Uncontrolled movements (like chorea) and problems with walking, balancing, or moving around safely
MIND
Forgetfulness and difficulty with thinking, paying attention, and making decisions
MOOD
Personality changes, depression, low or no motivation, irritability, and emotional reactions
It’s important to know that symptoms will vary from person to person,
as everyone’s journey with HD is unique.
Almost everyone with HD
will experience chorea
The term chorea (cor-EE-uh) comes from the Greek word that means “to dance.”
These involuntary, uncontrollable movements can make it look like you’re dancing,
restless, or fidgety.
While there is no cure for HD, there are
medications that can help relieve some
of the symptoms, like chorea.
While they are not always obvious, changes to the way you think and behave can be some of the earliest symptoms of HD. You may even experience these changes before you begin to have movement problems.
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While chorea is not the only symptom of HD, research has shown it is the most common.
There are treatments specifically approved to treat HD chorea.
It’s important to know that symptoms will vary from person
to person, as everyone’s journey with HD is unique.
However, almost everyone with HD (90%) will experience chorea.
Just because you have an HD diagnosis doesn't mean that all symptoms will appear at once or at all. HD is a progressive disease, and over time, the symptoms of HD may get more noticeable, worsen, or change.
The progression of HD can be understood in 3 stages:
The symptoms of HD usually start between the ages of 30 and 50. But people can develop HD symptoms at any age. In some families, symptoms may be seen earlier with each generation.
It’s important to educate yourself about all the symptoms of HD, even the ones you’re not currently experiencing.
Knowing what to expect may help you or your loved one notice any changes early, allowing your care team to act earlier, too.
Creating a community of support is an important step after an HD diagnosis or positive test result.
Explore care team & community
There is support and community for HD caregivers like you.
Find caregiver supportTreatment for HD chorea
is available
